RALEIGH – During National Family Caregivers and National Alzheimer’s Disease Awareness Month in November, the Alzheimer’s Association Eastern North Carolina Chapter is encouraging dementia caregivers to make their own health an equal priority as they navigate the demands and stresses of caring for someone else.

Currently, there are more than 373,000 caregivers in North Carolina providing care to more than 210,000 living with Alzheimer’s disease.

“As difficult as it may be, caregivers need to make their health and well-being an equal priority,” said Christine John-Fuller, executive director, Alzheimer’s Association, Eastern North Carolina Chapter. “Maintaining your health can help you be a better caregiver. No caregiver should face this disease alone. The Alzheimer’s Association is here to help.”

Caring for those living with Alzheimer’s or other dementia poses special challenges for family caregivers.

As dementia symptoms worsen, caregivers can experience increased emotional stress, depression, anxiety, and new or worsened health problems.

In addition, caregivers often experience depleted finances due to disruptions in employment and paying for health care or other services.

“Caring for a person with Alzheimer’s takes longer, lasts longer, is more personal and intrusive than most other diseases, and takes a heavy toll on the health of the caregivers themselves,” said John-Fuller. “During the course of the disease, caregiving tasks escalate and become more intensive. As a result, many dementia caregivers neglect their own health needs and that can be a recipe for disaster.”

Across the country, 59% of dementia caregivers report high to very high emotional stress due to caregiving and 38% report high to very high physical stress due to caregiving.

Seventy-four percent of dementia caregivers report they are “somewhat concerned” to “very concerned” about maintaining their own health since becoming a caregiver. In North Carolina, 67,513 (18.1%) of dementia caregivers report frequent poor physical health.

To help caregivers balance competing priorities while maintaining their overall health and well-being, the Alzheimer’s Association offers these tips:

• Find time for yourself. It’s normal to need a break from caregiving duties. No one can do it all by themselves. Consider taking advantage of respite care or help from family and friends to spend time doing something you enjoy.

• Become an educated caregiver. Understand the disease, its progression and accompanying behavioral and physical changes. Know resources in your community that can help.

• Build a support network. Organize friends and family who want to help provide care and support. Access local caregiver support groups or online communities, such as ALZConnected, to connect with other caregivers. If stress becomes overwhelming, seek professional help.

• Take care of yourself. Try to eat well, exercise and get plenty of rest. Making sure that you are healthy can help you be a better caregiver.

• Avoid caregiver burnout. Sustained caregiver stress can lead to caregiver burnout – a state of physical, emotional and mental exhaustion. The Alzheimer’s Association offers Caregiver Stress Check to help caregivers identify and avoid caregiver burnout.

• Accept changes. Eventually your loved one will need more intensive kinds of care. Research care options now so you are ready for the changes as they occur.

• Know you’re doing your best. It’s normal to lose patience or feel like your care may fall short sometimes. You’re doing the best you can. For support and encouragement, consider joining an online or in-person support group.

“It’s important that dementia caregivers not isolate themselves,” said John-Fuller. “Connecting with other caregivers and support organizations can help you find the information, resources and emotional support needed to help stay physically and emotionally strong so you can take care of yourself while you provide care to others. In the end, taking care of yourself so you can be a better caregiver is really a gift to the person you are caring for.”

The Alzheimer’s Association Chapters in North Carolina offers free education programs and support groups to help all area caregivers and their families.

During National Alzheimer’s Disease Awareness Month and National Family Caregivers Month, our featured programs throughout central and eastern N.C. include:

Community Caregiver Workshop: Living in the Moment | Nov. 9 | 9 a.m. – 12:30 p.m. | Leland – Speakers will share lessons learned and experiences in hospice care, focusing on the power of positivity, laughter, storytelling, play, and of course, gratitude. Program made possible through the Caregiver Academy, a community collaboration across the Cape Fear Region between the Alzheimer’s Association, Cape Fear Council of Governments Area Agency on Aging and LifeCare Memory Partners.

Alzheimer’s Facts, Figures and Caregiving | Nov. 13 | 4 – 5 p.m. | Greenville – Learn about caregiving statistics from the Alzheimer’s Association 2024 Alzheimer’s Disease Facts & Figures report, the burden of dementia caregivers nationally and statewide, its impact to the community and the role of public health in supporting caregivers.

Dementia Conversations: Driving, Doctor Visits and Legal & Financial | Nov. 14 | 10 – 11 a.m. | Leland – When someone is showing signs of dementia, it’s time to talk. Often, conversations with family about changing behaviors can be challenging and uncomfortable. This program provides tips for breaking the ice with your family so you can address some of the most common issues that are difficult to discuss: going to the doctor for a diagnosis or medical treatment, deciding when to stop driving, and making legal and financial plans for future care. A Caregiver Academy hosted program.

Empowered Caregiver: Communicating Effectively and Responding to Dementia-Related Behaviors | Nov. 14 | 12:30 – 1:30 p.m. | Durham – Dementia affects a person’s ability to communicate and creates changes in their behaviors. Join us to discover new ways to communicate effectively at any stage of the disease. You will learn tips to improve communication, steps to recognize and manage dementia-related behaviors and their triggers, and how to recognize when additional help is needed.

The Empowered Caregiver: Supporting Independence | Nov. 14 | 4 – 5 p.m. | Wilmington – A person living with dementia often wants to stay independent for as long as possible. Caregivers can learn how to balance safety and manage expectations to support independence at every stage of the disease. A Caregiver Academy hosted program.

Caregiving During the Holidays | Nov. 16 | 2 – 3 p.m. | live webinar – For many caregivers the holiday season gives rise to stress, frustration, and anger, instead of peace and goodwill. This program is designed to teach caregivers to care for themselves, and their loved ones, and about holiday safety all while giving suggestions that may make the holidays more enjoyable for you and your loved ones.

Holidays & Dementia: Recognizing Warning Signs & Supporting Caregivers | Nov. 20 | 4 – 5:30 p.m. | Wilmington – Learn what caregivers are facing during the holiday season, ways to support them, and strategies for families and friends to adjust expectations and modify celebrations. A Caregiver Academy hosted program.

All programs are free, but pre-registration is required. For a complete list of programs, and support groups, or to register for upcoming programs, visit act.alz.org/encmonthlyprograms or call (800) 272-3900.

The Alzheimer’s Association provides local support and programs to families facing this devastating disease, including a 24-7 Helpline staffed by master’s level clinicians and specialists who are available 365 days a year and can help families navigate a variety of disease-related issues. Call (800) 272-3900.